College of Science and Health Theses and Dissertations

Date of Award

Summer 8-20-2023

Degree Type

Dissertation

Degree Name

Doctor of Philosophy (PhD)

Department

Psychology

First Advisor

Susan Tran, PhD

Second Advisor

Jocelyn Carter, PhD

Third Advisor

Antonio Polo, PhD

Abstract

The current project aimed to develop and pilot test a psychosocial support tool and coping resource: the Cellie Coping Kit for Craniofacial Conditions (Cellie Kit). We adapted a cognitive behavioral theory-based tool that promotes resilience and coping, the Cellie Coping Kit, to be appropriate for families of children with craniofacial conditions. Adaptation was guided by an integration of the Cellie Kit adaptation process with heuristic and ecological validity frameworks to increase cultural sensitivity for Hispanic/Latinx families. Kit adaptation and current pilot testing are part of a larger project that includes kit translation, production, and pilot testing of a bilingual Spanish-English Cellie Kit, in addition to the English Cellie Kit development and pilot testing focused on within the current study. Presently, six English speaking families were enrolled and four completed the Cellie Kit Intervention Program, pre- and post-measures, and semi-structured satisfaction interviews and questionnaires at the end of their participation. A mixed-methods approach including descriptive statistics and codebook thematic analysis, were utilized. Study feasibility and acceptability aims were explored through examining researcher fidelity forms, and quantitative and qualitative review of verbal and written participant reports. We found evidence for the feasibility of the coping intervention based on intervention implementation metrics, and both feasibility and acceptability based on participant-reports. Findings will inform future modifications to enhance kit materials and intervention program design as well as guide future evaluation, and potential for integration into routine clinical care.

SLP Collection

no

Included in

Psychology Commons

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